Data Sets and Studies – Locating Black Autism

This page includes references to studies and reports about the diagnosis, treatment, occurance of Autism Spectrum Disorders, as well as Developmental and Intellectual disabilities, especially as they relate to Black and Brown populations. In addition there are more general references to broader populations, as well as to other underrepresented populations, such as Indigenous, Queer and Trans. Most of the entries are from medical, scientific and scholarly journals, so they may be located behind a paywall.

Library of Data Sets and Studies:

Bennett, E. A., & Heaton, P. (2017). Defining the clinical and cognitive phenotype of child savants with autism spectrum disorder. Current Pediatric Research, 21(1). https://www.alliedacademies.org/abstract/defining-the-clinical-and-cognitive-phenotype-of-child-savants-with-autism-spectrum-disorder-6426.html

Constantino, J. N., Abbacchi, A. M., Saulnier, C., Klaiman, C., Mandell, D. S., Zhang, Y., Hawks, Z., Bates, J., Klin, A., Shattuck, P., Molholm, S., Fitzgerald, R., Roux, A., Lowe, J. K., & Geschwind, D. H. (2020). Timing of the Diagnosis of Autism in African American Children. Pediatrics, 146(3). https://doi.org/10.1542/peds.2019-3629

Treffert, D. A. (2009). The savant syndrome: an extraordinary condition. A synopsis: past, present, future. Philosophical Transactions of the Royal Society B: Biological Sciences, 364(1522), 1351–1357. https://doi.org/10.1098/rstb.2008.0326